“Isn’t there anyone who knows what Christmas is about?”

We watched Charlie Brown the other night.  Takes me back to my childhood and I’m happy to continue the tradition with my own children.

“Skyboobs some milk!”  Timothy’s pet name for Skylar hahaha, makes me laugh every time I hear it.  Its kind of a Christmas miracle to hear him request anything…its kind of a BIG deal.  Any time I look back to how far he(we) have come I am amazed.

I just completed and dropped off the Incontinence Grant forms to our pediatrician as Timothy is getting into a new age category:6-19 yrs.  His grant amount will go up (hopefully) next year, although I’m not quite sure even what diapers you go to after you outsize Huggies/Pampers pull ups?  Guess soon we will find out.  The young lad is up to about forty pounds these days and TALL.  What he eats right now is popcorn and a lot of it.  We go through a big box of orville at least per week.  Has to be in the microwave “bowl” packaging, not a plastic bowl, heaven forbid.


IBI has begun and our lives have become even crazier.  Timothy goes to school Tuesdays and Thursdays and to IBI Monday, Wednesday and Fridays 9-1230 which has become a bit of a   scheduling nightmare.  Thankfully we have a wonderful daycare provider who helps out a lot with pick ups. 

He started out with a bit of a set back.  The staff found him quite aggressive and to my dismay things were scaled back from 9-3 to 9-1230.  I was scared.  IBI was “it”.  If he can’t do it then now what?  Thankfully they are tolerant at therapy and reassured us that he wouldn’t be “kicked out” things would just be slowed down.  Timothy is tired but getting used to this new schedule.  It is WORK.  So that’s what we call it.  When he’s finished “work” we go to McDonalds for french fries.  Its become a routine.  His therapists are surprised and excited to tell us that Timothy has many skills!

I feel peace this December.  I feel happiness.  My life isn’t what I pictured it to be, its even better.

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