1 in 68

Another summer has passed.

And so has my one year “Blog-o-ver-sary”.  Sharing Timothy’s journey for the past 13 months has been hard-happy-sad-tearful-angry-joyful-grateful and damn eye opening.  No longer am I in mourning of the child I thought I should have.  No more “ripped off” feelings…….shameful, I know, but I felt it and even now I will own those feelings with no regret in my heart. Years ago, when I had no idea what autism was; when he would melt down in public my face would burn with all of the eyes on him.  I could hear others thinking and even those that chose to voice their disapproval aloud.  “He needs a spanking”  or “terrible parent”.  It was my fear to be “that parent”.    I had no freaking clue what was happening inside him, what he saw, what he felt.  Extreme sensory overload.  Fear.  Anxiety.  Autism.  This was my third child, wasn’t I supposed to be some sort of expert by now?  Not even close.  Autism had claimed my child, my beautiful tow headed boy and had him in a death grip.  It has been our mission to loosen that grip ever since and every day we come a little closer to understanding what is happening in his world.  He is 1 in 68 according to the current stats.

Wait a minute.  My kid’s not just a number. His name is Timothy. He is six years old and going into grade one tomorrow. Here he is so you can say hello!

Photo: Yesterday was a hard day. This is the calm after the storm.

Our home may have train tracks throughout the kitchen.  It may have crayon scribbles in the hallways and random cards and pictures taped to mirrors and doors.  Our cupboards are stocked with microwave popcorn and apple juice boxes because that is what Timothy eats.  (really).  He may be 1 in 68 to everyone else but he is 1 in 1,000,000 to us.

Our lives are wacky, messy, and downright hard-imeancan’ttakeanotherday hard.  But I wouldn’t trade it for anything.

Photo: #autisminourhouse

This is autism in our house.

HEART

thebookoftimothyonfacebook

2 thoughts on “1 in 68

  1. Hi.
    My grandson ian is 8 yo. The devt-pedia said he has symptoms of autism.i am anxiously waiting for the 2nd assessment on june but he is already on an OT for social skill competence program.
    My concern at the moment (among many other things hahaha) is his loss of appetite since about 6 weeks now.i have come to the point of preparing for him his fav junk foods just to encourage him to eat.
    It’s comforting to know reading from your posts that you give your son Timothy what he likes to eat no natter if its healthy or not.
    Has Tim been a picky eater from the beginning?
    How do you supplement his nutritional needs?
    -lolab

    1. Hi Lola,
      Thanks for your comment.
      Yes, I do feed Timothy what he will eat because the saying “they will eat when they’re hungry” isn’t really true of ASD children…they will NOT eat period. Timothy would eat anything until about 18 months and then he began to decline and his ASD became more prominent.
      I have tried nutritional drinks, vitamins, hiding things in his food and he just will not take them. Still, I keep trying. Don’t give up! Continue to offer him everything and one day he may surprise you and try it!
      Please follow me over here~ I have moved my blog:
      http://thebookoftimothy.blogspot.ca/

      xo
      Trish

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s